During this time with the pandemic of COVID-19, ERN-LUNG remains committed to its aims to provide the best possible support to patients with rare respiratory diseases and their families.

ERN-LUNG members are continuously monitoring all activities and reports related to COVID-19 in patients with rare diseases of the respiratory system. Experience is not sufficient yet to publish any disease specific information or recommendation but, ERN-LUNG will share all relevant information on its webpage via a dedicated section that will continuously be updated.