ELF has recently launched a new website providing information about sarcoidosis for people with the condition and their family members and caregivers during Sarcoidosis Awareness Month, with the aim to raise awareness of this rare condition and signpost to useful resources and organisations in Europe and beyond.
The website includes a new resource, the Sarcoidosis Patient Compass. This is an interactive tool to help people navigate their own sarcoidosis journey, and to highlight key questions they may want to ask healthcare professionals involved in their care. The patient compass is available to download for free and is available in Dutch, English, French, German and Italian with versions in Serbian and Spanish coming soon.
The website also links to patient support organisations across the globe who you can contact to get more detailed information about sarcoidosis in your own language.
The website has been developed with input from the ELF sarcoidosis patient advisory group and healthcare experts from the European Respiratory Society in the sarcoidosis field from around the world.