The Q-Life app is developed by the CF Center of the UMC Utrecht, in collaboration with the Dutch Cystic Fibrosis Foundation (NCFS) and Solviteers. On this app, patients can define for themselves which factors or criteria are important for their quality of life, rank them in order of importance, and rate these factors over time. All this information is then used by the app to calculate an overall score. The app is already validated and useful for other chronic rare diseases.
The Q-Life app is currently only available for people with CF who participate in the Q-Life project. If you are also interested in using the Q-Life app, please contact Q-Life@umcutrecht.nl.