 | Alpha-1 UK Support Group / Alpha-1 Global | Karen O'Hara | AATD |
 | Longfonds, Netherlands | Marjo Poulissen
Edwin J. Brekelmans
Brigitte van Berkel | AATD |
 | Alpha-1 Italia / Alpha-1 Global | Stefano Guerini | AATD |
 | Cystic Fibrosis Europe, Belgium | Hilde De Keyser
Elise Lammertyn | CF |
 | HALO vzw, Belgium | Patrick Vandorpe | CLAD |
 | Deutsche Sarkoidose-Vereinigung e.V., Germany | Bernd Quadder | ILD |
 | European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF), Belgium | Liam Galvin | ILD |
 | Irish Lung Fibrosis Association, Ireland | Liam Galvin | ILD |
 | Unione Trapiantati polmone di Padova, Italy | Stefano Pavanello | ILD |
 | Amici Contro la Sarcoidosi Italia Onlus, Italy | Filippo Martone | ILD |
 | The June Hancock Mesothelioma Research Fund, UK | Kate Hill | MSTO |
 | Bronchiectasis Patient Advisory Group (ELF group), Spain | Marta Almagro | nCF-BE |
 | Associazione italiana per la Sindrome da Ipoventilazione Centrale Congenita - Sindrome di Ondine (A.I.S.I.C.C.), Italy | Alessandro Carcano | ORLD |
 | Childhood Interstitial Lung Disease (chILD), UK | Carlee Gilbert | ORLD |
 | Sarkoidose-Netzwerk e. V., Bonn, Germany | Bernd Stachetzki | ORLD |
 | Lungenfibrose e.V, Germany | Dagmar Kauschka | ORLD |
 | KEKS eV - Esophageal atresia and diseased esophagus, Germany | Anke Widenmann-Grolig | ORLD |
 | Lungenfibrose Forum, Austria | Johann Hochreiter | ORLD |
 | Kartagener Syndrom und Primäre Ciliäre Dyskinesie e.V., Germany | Bernhard Rindlisbacher | PCD |
 | European Pulmonary Hypertension Association (PHA Europe), Hungary | Gergely Meszaros | PH |
 | HTAP Belgique - Association des patients souffrant d'HyperTension Artérielle Pulmonaire A.S.B.L., Belgium | Luc Matthysen | PH |
 | National Patients' Organisation, Bulgaria | Natalia Maeva | PH |
| European Lung Foundation, UK | Pippa Powell
Jeanette Boyd | |
 | EURORDIS | Matt Bolz Johnson
Lenja Wiehe | |
